How low can we go?!?  Not much further according to the doctors.  He said the numbers should start going back up at our next blood work appointment on Sunday.  He did say that everything including me was normal.  Okay you can stop laughing now cause I know you all think I am anything but normal!!

My white blood cell count was 500, platelets 47000, pulse ox 92, temp 36C, hemoglobins 3.3 and blood pressure 107/75.  Now ponder that what you want, they are really just numbers to me but I want to keep up with them for my own records.  I spoke with him about not finding anyone yet to give the after care infusions of rituxin and he said they would help me with that!  How? I don’t know yet!

Now I am going to do some complaining and I am sure that will come as a shock to everyone!  I signed a contract with a lady to supply my caregiver, which I have been happy with, but the administration part has left a lot to be desired.  A copy of the signed contract should be signed and made available to all parties involved and this has not been the case.  Contract states that caregiver supplies blood pressure cuff, thermometer plus other stuff which he had no idea he was to do such.

I had a little bit of tummy ache and he felt my head and said I could have a fever!  With that being a major concern during HSCT, I told Chriss to get a thermometer.  The comment he got back was borrow one from another carer! Unacceptable in my eyes and for what I am paying for the service.  That contract was the main reason I went with this company and for what the administration is making they can supply their carers with the items they list as being supplied!! Had I known that I would have to buy one, I would have brought one from home, I’m sure I only have a dozen around the house so now I have a baker’s dozen! my temp was 36.something, normal again!

I guess I should be thankful that there is only a week left and I’m not upset at the start of the treatment!  Any way things are pretty slow here today and my tummy has calmed down, so it could have been the chilli Mac from the bucket that upset it!

Oh well, until tomorrow which will be a slow day again!