Well it has been a month since I have been home and things are going great.  I have had my weekly blood work and the numbers have been slowly going up.  I also have had blood work to tell me if I have any ‘b’ cells left.  Unfortunately, I have no idea how to read it.  I am going to email it to Dr. Ruiz for him to look at and if it shows they are dead then I hope he will tell me that I don’t need to worry about the Rituximab© infusions.  I still haven’t found a doctor that will write the script even tho it has been used to treat auto immune diseases and transplant patients, which I fall in both categories.

I have had a complete blood test (cbc) each week since I have been back and so far the numbers have been in the normal range except I am a little anemic. I just sent copies of the results to Dr. Ruiz in Mexico and hopefully he will tell me I can go to church and maybe eat out!  TV dinners and the 4 walls of my house are getting boring.  I have been to the grocery store and Fred’s but only when it hasn’t been busy.

My head has been on an itching spree!  I still am losing it (the hair not my head) and I think I will have to have Dad shave it again.  They said that it might be five months before it comes back other than just patches. All of this is minor hindrances compared to what little improvements I have seen.  I even used my walker for just a few feet and I think Mom was even surprised at how much more I was picking my feet up.  I can even open and close a pair of scissors with my right hand which I haven’t been able to do that in years!  I am still only having to get up once during the night instead of every 2 hours!

I go see my PCP Monday for him to look at my thumb and see what I have done, the joint is twice as big as the other one.  I also need to see if he will set me up for physical therapy so I can get started with that.

I am also trying to get my power wheelchair worked on and I have only been dealing with that since September!  After I got the doctor to get the papers filled out, I called to check on the status and was informed they did not have a technician in this area.  I thanked them for calling to let me know, she started to thank me and she realized that I had called her!  Duh!!  but she was going to call me that day – yeah right!  Anyway, I was given another company to call and am waiting for them to get back with me but they aren’t contracted with my insurance. But that really doesn’t matter very much because I have to have it fixed before the gears really lock up!  I have a mind to call the manufacturer and tell them if the chair can’t be worked on in this area then they need to quit selling it in this area!

I need to stop telling the story because I can tell it is making me mad all over again.

I will try to do monthly posts to keep everyone updated on my updates so —

Everyone have a Merry Christmas and

Keep Jesus in the Season!!