Well, I bit the bullet and had my last infusion of Tysabri today!  We will see how well I do until I get another date.  I spoke with the hematologist nurse that does the infusions and asked her if my PCP would prescribe the Rituximab, would they give me the infusions.  She didn’t think there would be a problem, more with the billing and insurance.  Told her, I would pay out-of-pocket if I have to.

They are going to make me an appointment in 6 months hoping that I have gone to Mexico, had the treatment, and returned ready to be treated with Rituximab.

One major decision down; many, many more to go!

Come join us as we listen to and lift our voices up to praise the Lord and pray for me as I wait for another date to have Hematopoietic Stem Cell Transplantation (HSCT) treatment in Mexico.  I received an email yesterday from Danielle with a date of May 23rd and it broke my heart that I had to turn it down.  I will not have completed my 3 month washout of my Tysabri infusion.  I asked for a date after July 31st so Team Mo can do this fundraiser and another one at least.  I am going to start Monday working on refinancing my house and get the equity out of it.  That hurts since I only have 6 years left on this note but doesn’t hurt as bad as MS disrupts my life.  I think we will have some great singing that night cause I know Shady Grove has several and I hope others come too.  Hope to see you there Friday, April 22nd!  God Bless!

These pictures are Chad Speer holding the basket for Marley Speer to draw the winning ticket for the diamond earrings won by Kelly Gregory.

Maks Speer drawing the winning ticket for the rifle won by Mayor Jim Poole.

I would like to take this time to thank everyone who helped make these raffles a success!  I have a long way to go for raising money but I think I have a year before I will get a date to go for the treatment.  I am excited and apprehensive at the same time.

Keep an eye on this web page for future fundraising.  Team Mo will be having a meeting soon to decide what our next adventure will be!

Thank You!

Finally after 3 weeks, I got my Tysabri infusion today!  between the weather and my neuro’s office, I was beginning to wonder.

I have contacted Clinic Ruiz in Mexico and asked if I made this my last infusion could I go on the cancellation list in hopes that I could get a sooner date.  I don’t think they will allow me to but I am so ready to get this done.

The raffles were going to stop on the 23rd, but the weather did not cooperate for us.  I didn’t make it to all the places I wanted to go and others had sold tickets that couldn’t make it into town to be put in the drawing.  Team Mo’s captain, Marty, is out of town and the weather has her snowed in on the east coast, so as soon as she gets back into town, we will get the gun and earrings drawn for.  Sorry for the inconvenience.  The drawings will be held within the next 2 weeks whether we have sold all the tickets or not.

Thanks in advance for being patient with us.

This is a video that aired on BBC.  This is done on a clinical trial that is associated with Chicago.  They act like they have come across something new, but it has been around since 2009 I know.  I have been reading and the HSCT Forum says that it has been a treatment in Russia for 10 years. Unfortunately I just found out about it in June 2015.  It took me until October to decide to apply.

I have been turned down by Chicago for the clinical trial and am on the waitlist for Mexico.

Keep your fingers crossed that my date comes soon.  I have been trying to set down and make an itemization of expenses but I haven’t.  The treatment alone is $54,500US.  I will have to take a carer and will pay for there expenses plus mine: such as airfare, passports, drugs required after coming home that insurance will not cover.  That’s just off the top of my head and I know there will be more.