After chatting with WordPress last night, this should now have a photo to the left of the writing when I share this on Facebook. This is a trial run and we shall see. Crossing my fingers before I hit publish!
These pictures are Chad Speer holding the basket for Marley Speer to draw the winning ticket for the diamond earrings won by Kelly Gregory.
Maks Speer drawing the winning ticket for the rifle won by Mayor Jim Poole.
I would like to take this time to thank everyone who helped make these raffles a success! I have a long way to go for raising money but I think I have a year before I will get a date to go for the treatment. I am excited and apprehensive at the same time.
Keep an eye on this web page for future fundraising. Team Mo will be having a meeting soon to decide what our next adventure will be!
Thank You!
Finally after 3 weeks, I got my Tysabri infusion today! between the weather and my neuro’s office, I was beginning to wonder.
I have contacted Clinic Ruiz in Mexico and asked if I made this my last infusion could I go on the cancellation list in hopes that I could get a sooner date. I don’t think they will allow me to but I am so ready to get this done.
The raffles were going to stop on the 23rd, but the weather did not cooperate for us. I didn’t make it to all the places I wanted to go and others had sold tickets that couldn’t make it into town to be put in the drawing. Team Mo’s captain, Marty, is out of town and the weather has her snowed in on the east coast, so as soon as she gets back into town, we will get the gun and earrings drawn for. Sorry for the inconvenience. The drawings will be held within the next 2 weeks whether we have sold all the tickets or not.
Thanks in advance for being patient with us.
This is a video that aired on BBC. This is done on a clinical trial that is associated with Chicago. They act like they have come across something new, but it has been around since 2009 I know. I have been reading and the HSCT Forum says that it has been a treatment in Russia for 10 years. Unfortunately I just found out about it in June 2015. It took me until October to decide to apply.
I have been turned down by Chicago for the clinical trial and am on the waitlist for Mexico.
Keep your fingers crossed that my date comes soon. I have been trying to set down and make an itemization of expenses but I haven’t. The treatment alone is $54,500US. I will have to take a carer and will pay for there expenses plus mine: such as airfare, passports, drugs required after coming home that insurance will not cover. That’s just off the top of my head and I know there will be more.
Hope everyone had an enjoyable Thanksgiving with family, friends, food, and fun! Spent the day at Mom & Dad’s and enjoyed duck soup and the start of what I thought was the start of another 40 days & nights of rain. Thankfully it was just 3!
Team Mo still has raffle tickets available. The gun tickets are going pretty fast. We have decided to set up a table at the Christmas on the square here in Piggott Sunday to sell tickets. Hope the weather holds even as KAIT-8 is showing on the 7 day forecast. I know that is 7 days that it can change!
Hope to see everyone at the Christmas on the Square, Sunday, December 6th from 1pm – 4pm. Christmas parade follows.
Well, the answer is as I expected! Just got an email telling me I don’t meet the age requirement and have not had an onset in the last 12 months. I guess just slowly going downhill at slow pace is not as good as having a full blown episode! So hope one of the out-of-country facilities accept me.
I, as of last week, am on the waitlist in Mexico City; but they are making appointments into 2017. We shall see what happens. In the meantime, I have sent a request Friday to Germany for info and application , plus tonight I sent my completed application back to Chicago to be in a clinical trial. I’ll take whichever location I get a date from first. Keep your fingers crossed!
Hello, my first official blog on my web page. This is a trial to see what happens.
Hello and welcome to my page, Mo’s Revenge on MS. I have set up this site to keep a journal of my trip down the road to a better life with HSCT (HEMATOPOIETIC STEM CELL TRANSPLANT) to halt the progression of my Multiple Sclerosis. I hope you follow my trip through fundraising, waiting for an appointment date, having the procedure, and the best part of the journey – the recovery and the chance to possibly regain some of the movement I have lost over the years but mainly to put a halt to my MS Flare-ups.
Please enjoy the trip!