Category Archives: Updates

PHYSICAL THERAPY today

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Today I walked about 40 feet twice with a rest in between and one final round of about 20 feet before my right leg said enough. It was very tired and I couldn’t pick my foot up another step.  It seems that I am not putting as much weight on my walker or it is my imagination.  I am going to walk hear at the house for Dad to see if he can tell a difference. Jacinda gave me some exercises to help build my muscles up around my knees to help with the heperextending my knees.  I am doing the stand up set down without locking my right knee.

Next thing I will worry about is getting up out of a regular chair. Until I can walk any length of time, I don’t have to worry about that cause my power chair seat is farther from the floor than a regular chair!  One step at a time but after 3¹/² years I am still seeing and having improvements!

Physical Therapy again!

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Well I am trying to get back walking again  but it is hard with a hyperextended right knee which makes me drag my foot. I am able to bend it a little more than I could.

I had to buy a new Swedish knee brace because I had lost enough weight that the large was just too big. I needed to lose the weight but I wasn’t expecting it to cost me $200 for new brace and $100 for platform attachments for my walker. Oh well price I’ll pay to hopefully walk again some day. My scales say I’ve lost 49 pounds. Hopefully I can continue.

I can only walk about 20 feet before I can’t pick foot up but I’m not putting as much weight on my walker. I did 4 rounds of 20 feet with a short rest in between!   It’s looking promising.  I have only did 6 sessions so far.

Keep your fingers crossed!

WOW-almost 4 years

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Haven’t posted in over a year so thought I would give some info. I am so happy that I followed thru and found out about HSCT. I have done things that I couldn’t do 5 years ago. I have cooked 3 meals, capped & cleaned 2 ¹/² flats of strawberries, washed dishes and doing my nails with Color Street Nail strips. My nails haven’t had color on them since I was diagnosed in April 1992.

I’ve mopped and swept, can you believe I am bragging about doing housework?! Can’t wait for my housekeeper to start when this is over.

I would still like to find a doctor that would prescribe me some Rituxin  but can’t.  I am still in my power chair but that’s okay since I have both hands right now.

My balance is better but I still don’t try to stand very long without holding onto something (don’t want to fall).

Got a deck and ramp built around 3 sides of my house and put a door in my master bedroom so I can get around outside and not be in the mud. My dog, Shadow, likes it more than me, I think!

Hope everyone is staying safe during this COVID-19 virus. I haven’t been to a Walmart since March but Amazon really likes me not going anywhere but the local grocery store.

Be safe everyone and take care.