What a week this has been. An HSCT date cannot come fast enough.  I am about ready to start my washout of my Tysabri now just because I’m tired of jumping thru hoops and still not getting anything done. . I am so ready to cut that cord with my monthly drippy date, the IV pole!  Monday comes tomorrow and it starts again!

Monday-steroid shot for bronchitis and was supposed to have my Tysabri infusion on Tuesday. Started calling nurse and doctor’s office to see if I would have it done!  Nurse said come ahead.  Never hear from the doctor’s office.

Tuesday-we drive to Paragould for the infusion and my blood count is so high that I can’t get it but on top of that.  The order had expired for them to give me the drug that was not ordered by them until this day.  I call doctor’s office twice and receive no call back!

Wednesday-called doctor’s office again and do not receive a call back.  Signed up to the NEA Baptist My Chart thinking I could send a message this way that possibly it was like everything else and had gone to the computer.  If it was an emergency log off and go to the ER! Really?  If you need contacted sooner, sign off and call them by phone!  Really again?

Thursday-called doctor’s office again and still no reply.  Called the infusion center to see if they can try calling the doctor’s office to get this done.  They are going to try.

Friday- no calls from anyone so I get to start fresh Monday!

Has my neuro decided to have nothing to do with me after we talked about HSCT and he stated that he didn’t know much about it but if that’s what I wanted to do he would work with me. Hmmm?  Well the feeling is very mutual right now.  My GP said he would support me any way he is needed.