It started with a unintentional slide out of bed onto the floor at 6am this morning! I tried to not do it but you can’t use your hands to move a stationary leg and still hold onto the bed! I sat there and looked at the grab bars in my bathroom and of course I over thunk things!
I scooted myself to the bathroom and I couldn’t pull myself up so I moved on to the next set and thought if I could pull myself up to sit on the pot(that was my goal when I woke up anyway) That didn’t happen either so I decided I would slither on into my shower stall and use those bars.
Guess what? That didn’t work either but I also thought if I couldn’t hold it anymore I was in a safe spot and wouldn’t be that much of a cleanup. Good thing nothing happened but I just gave up and pushed my iSafe Responder and had them call Mom & Dad. They got over here, had two comments. 1) at least it’s not midnight! and 2) you’re going to lose some weight! (that had already went thru my brain)
We got my hoist seat under me and rolled me out of the bathroom and over my power chair. Kinda weird hanging in the air not seeing anything but the face of the person that has your life in their hands and then get twirled around. That was still the best thing my insurance did for us!
2 weeks until HSCT and if I get just a little bit back that will help me help them get me out of the floor it’s all worth it.
Mo's Revenge on MS 
Mo I did laugh when I read your description of you using your hoist, it so sounded like me tonight as my carers got me into bed, can I ask what your EDSS is/was please ? I live in the UK and am looking at getting HSCT, as yet I do not know where I will go I suppose it depends on which hospitals will take me and how soon I can get in, I have not seen a specialist for more than 10 years as my GP does not think it necessary! but I have recently learnt I can demand a referral from him, so I will be seeing one and hopefully getting an MRI and EDSS, unfortunately tho the N.H.S. are treating some people with hsct I do not fit their criteria as I have been diagnosed with MS for more than 10 years which is their cut off time limit, I am signing up to follow your progress and I wish you all the best and I hope to follow you into this world of HSCTstopping ms vetting worse/killing me.
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Deborah,
I gave my EDSS as 6.5 to 7.0. My neuro said that he didn’t use that scale, so I rated myself at what I thought I was. I can stand and walk a little bit but my right knee will not bend without help. I was turned down by Dr. Burt’s clinical trial. I actually didn’t get past the request for an application email. I was over the age of 55(59 now), had MS over 10 years (24 years) and no exacerbation in 12 months that required treatment by steroids.
My neuro says that I am still RRMS but it think I am SPMS or PPMS. I think he wants to keep me RRMS so he could keep me on Tysabri and continue getting his kickback! I went off Tysabri 3/22/16 and I am so ready to kick MS’s butt!
I took me a year to get a date in Mexico but the have opened up another clinic in Monterray and making dates for there too. I wish all countries would approve HSCT for auto immune diseases but maybe one day. I hope to keep this as a daily diary for me, my parents, and anyone that would like to follow my treatment. Good luck to you and I say go for it before you get any worse. Thanks for following me.
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