My name is Merita Graddy Hanna and I am on the journey to have Hematopoietic Stem Cell Transplantation or HSCT to stop the progression of my multiple sclerosis (MS). I was diagnosed in April 1992 after an onset of numbness and tingling in my feet. This started on Thanksgiving Day 1991. I had just married Jimmy in October and we sure didn’t realize what kind of ride we were in for.
When my primary care doctor (PCP) sent me to a specialist, I knew they were barking up the wrong tree! I knew it was from back problems from a wreck I had in May ’91 totaling out my fiancé’s new car(one payment made)! They sent me to a neurologist, so I went by myself knowing more than my PCP, and did I get a slap on the face. I was given the ‘follow the finger’ test. He drops his hand and says “95% sure you have MS”. What??? As he leaves, he tells me to get an MRI and make an appointment! I went to the closest pay phone and called Jimmy and sobbed. I never dreamed that would be the diagnosis.
I feel that I have had MS since I was 7 years old, when I woke up and couldn’t move my left leg or walk. I spent one week in traction while in the hospital. I also went through physical therapy. The diagnosis then – could had settled in my hip joint!!
I have been on Betaseron, Avonex, and Tysabri and I slowly continue to decline. I have been in a power chair since last of 2013. I am hoping for HSCT anywhere to stop the progression of MS.
I also have MS and I hate It! My legs hurt so bad and lately it has started to spread all the way up to my hips . People try to understand it but because they cant always see something wrong they don’t think its so bad! Oh but it is! \May God Bless and keep you and I will pray for you
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I have to say I have been very lucky, I have not had pain with my MS. I started having walking and balance problems which has been my biggest concern. I can’t wait until October 10th when I go for HSCT. Yes, if they can’t see a cast or a Band-Aid there is nothing wrong with you. I guess I tried to have a cast but got tired of having one every Christmas so I have been in a power chair for about 4 years.
Thank you for the prayers and keep this site in mind. I hope to use this as a diary while in Mexico and beyond!
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